Empowering researchers to accelerate rare cancer treatments
Since 2013, we have worked tirelessly with patients, researchers, medical institutions, and patient advocacy foundations to lead a collective mission to find a cure for rare cancers.
Our Work
Rare cancers represent 27% of all cancer diagnoses, yet most rare cancers do not have effective treatments. With limited information about these diseases and limited access to tissue samples and medical records, researchers are struggling to make progress in improving patient outcomes.
We are building the tools and infrastructure to provide the research community with the vital building blocks needed to make substantial progress in cancer research and develop potential cures.
Our globally accessible network of patients provides researchers with unprecedented access to fresh tissue and the most extensive collection of paired clinical and molecular data on rare cancers.
Our patient-powered platform is revolutionizing the way researchers can access fresh tissue samples and clinically annotated data in one place, enabling the rapid advancement of scientific discovery.
Receive Living Tissue Samples Directly
RCRF has helped patients donate fresh tissue directly to researchers within hours of surgery from over 120 hospitals across the US, resulting in 58+ research models and countless data sets for rare cancers accessible by researchers anywhere in the world.
Access Our Tissue Sample Biobank
Our growing collection of rare cancer tissue, donated from patients across the US, enables you to study the rarest of cancers paired with clinically annotated data.
Access to Our Rare Cancer Data Commons
Currently in development, our Data Commons gives researchers access to rich data from across the rare cancer field, including clinical, diagnostic, and genomic data donated directly from rare cancer patients, into one place.
Connect with Rare Cancer Patients, Experts, and Fellow Researchers
We foster collaboration and build relationships that bridge the gap between rare cancer patients and leading experts, researchers, and clinicians.
120+
Partner Institutions within the USA
95%
Tissue Collection Success Rate
65+
Rare Cancer Models Developed
Partner with us
It’s an incredibly exciting time for the rare cancer research community. The speed at which we can turn data into new treatments has gotten faster than ever. Partner with us today.